Do any of you feel that you are young carers? Remember, to be a carer can involve looking after someone all day or it may just be that you clean the dishes, or help out around the house, or watch someone for a little while.
If you feel you are a carer we’d like to hear what kind of things you do and how you feel about being a young carer?
Hey i care for my father who had HD and my brother does help but he works alot and its left up to me. I struggle alot i just seem to loose my temper alot! my father has always been a difficult man but with the condition its ever harder to deal with him we fight alot and its mostly becasue of my temper and the fact that to loose it over the most simple things! anyone got any advice because to be honest this was a horrible week and really got me down and i dont want things to keep going like this..
Hi Lena & Ashley,
Thanks for sharing your experiences of being a young carer... it can be a quiet group, but there are so many young carers out there (especially in HD families). It is great to hear from you both and see how things are for you at the moment.
Ashley you mention that you lose your temper a lot with your father. What kind of things do you lose your temper with... could you provide some examples?
What made this week such a horrible one for you?
Welcome to the HDYO forum! Thanks for sharing your story with us.
You must be very busy being a caregiver for your father and a full time mom. What sort of help/support do you get from friends and family? It can be overwhelming dealing with it on your own. How are you feeling?
You mentioned your mother cannot take care of your father anymore. I was wondering if you are taking take of both of your parents?
Thanks again for sharing ☺
I like take care of myself as a carer for HD in family, and also try to do everything I enjoy. Not sure if that is the answer to what I'm good at or not, but I do it my way and try to learn from people that want to learn me :)
Also to have many impulses is a good part of me that I wouldn't take away... It's been good at HDYO family they want to give people enthusiastic their way, like a good way :)